National Organizations

American Association of the Deaf-Blind (AADB)
The only national organization run for, by and of deaf-blind individuals. It is a social networking and advocacy organization that provides information, resources and linkages to deaf-blind people and interested parties across the country.

American Foundation for the Blind (AFB)
AFB has a wealth of resources and publications in the area of blindness and visual impairment, as well as web resources for adults and children.

CHARGE Syndrome Foundation
The CHARGE Syndrome Foundation provides support to individuals with CHARGE syndrome and their families; gathers, develops, maintains and distributes information about CHARGE syndrome; and promotes awareness and research regarding its identification, causes and management.

Family Connect
Family Connect is a website geared specifically towards parents of children with blindness and visual impairment. It has many family friendly resources as well as opportunities for social networking online.

Helen Keller National Center (HKNC)
HKNC is the national rehabilitation center for adults who are deaf-blind. HKNC provides residential rehabilitation services at its center in addition to outreach services across the country through a network of regional representatives.

National Association of the Deaf (NAD)
The mission of the NAD is to preserve, protect, and promote the civil, human, and linguistic rights of deaf and hard-of-hearing individuals. The NAD website has a variety of resources relating to deafness with particular strength in the area of legal rights and advocacy.

National Association for Parents of Children with Visual Impairments (NAPVI)
NAPVI is an organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities.

National Center on Deaf-Blindness (NCDB)
The national federal technical assistance project established specifically for supporting state projects that serve children and young adults between the ages of 0 – 21 who are deaf-blind.

National Family Association of Deaf-Blind (NFADB)
NFADB supports deaf-blind people and their families. NFADB is a nonprofit, volunteer-based family association and the largest network of families focusing on issues surrounding deaf-blindness.

National Federation of the Blind (NFB)
NFB works in a number of areas in the field of blindness including advocacy, education, research, technology, and programs which encouraging independence. The NFB website has a variety of resources on blindness and information about their programs.

National Task Force on Deaf-Blind Interpreting (NTFDBI)
A partnership of the National Consortium of Interpreter Education Centers (NCIEC), the Registry of Interpreters for the Deaf (RID), and the American Association of the Deaf-Blind (AADB), the National Task Force focuses on interpreter education and preparedness of interpreters skilled in working with deaf-blind individuals.

Registry of Interpreters for the Deaf: DeafBlind Member Section (RID DBMS)
A group of interpreter practitioners and educators interested in providing adequate interpreting services to deafblind individuals.

Perkins School for the Blind
Perkins School for the Blind has a wealth of resources on deaf-blindness including publications as well as online training modules.

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